Formulate a Plan & Check Medical Coverage
While your precious baby rests peacefully in your arms, this is a perfect time to understand your medical coverage and set up the support systems your child will need to thrive.
Contact your insurance company and let them know about your beautiful new addition. Ask specifically about therapy coverage, out-of-pocket expenses, and any pre-authorization requirements. Understanding these details now will save you stress later.
Also reach out to your state's health department to learn about additional resources available to your family. This process might feel overwhelming, but taking it step by step will help you feel more in control.
Finding a local genetic counselor was one of the most valuable steps in Jack's early care journey. These compassionate professionals become incredible resources for your family, offering both medical insights and emotional support.
Your genetic counselor will help you understand your child's specific health profile, the type of Down syndrome they have, and what symptoms or health considerations to be aware of as they grow. Most families visit once a year, making this relationship a cornerstone of your child's care team.
During Jack's appointment, we learned so much about specific needs children with Down Syndrome may encounter, including information regarding his thyroid health and received a referral to a pediatric thyroid specialist. While Jack's pediatrician could have provided some of this information, having a genetic counselor meant we received comprehensive guidance and a detailed roadmap for his ongoing care.